We are sending in the order on the 1st, so if you wait too long you may not get a shirt. Thanks to those who have registered and donated, and we will see you in a few weeks!
Email timeforweimer@gmail.com if you have any questions.
Monday, July 23, 2012
Time for Weimer 5K
We are sending in the order on the 1st, so if you wait too long you may not get a shirt. Thanks to those who have registered and donated, and we will see you in a few weeks!
Email timeforweimer@gmail.com if you have any questions.
Friday, June 22, 2012
For Addi
There isn't much that can be said when it comes to losing a loved one. Especially if that loved one left far too soon. I asked Lana to send me some info on Addi. I didn't know her while she graced this earth, but from stories and pictures I feel a part of me will always belong to that sweet little girl.
As a mother, it is difficult to express what is felt when you think of your children. A mother always knows, or so goes the saying. We are meant to kiss away hurt, to lift, and to hold. The following entry came from what I am sure are the deepest, and most sensitive parts, of a soul. Dear, Lana?
You are indeed a woman made of something stronger.
"The other day, after Keaton went to school, I heard an ambulance and fire truck outside. When I looked out the window, sure enough, there they were parked in front of our neighbors home. I became suddenly sick, and my heart started beating faster as the events of the morning that Addi died came rushing back into my mind. Then? I cried. It was the worst day of my life, and those sirens will forever bring it back to my mind. Addi had been sick, and came to me and said, “Mama, I need to throw up.” I tried to calm her, and when she did throw up, bile from her stomach came out. When that happened, she couldn’t breath. I told her to relax and try to breath. She muttered an “Ok” and I said, “don’t try to talk.”
She tried to breath, and I tried to calm her but to no avail. She began to suffocate while I tried everything I could think of to save her. I did CPR until the paramedics came. When the paramedics arrived, I had hope that they could somehow save her. I took Keaton in the other room, so he didn’t have to watch anymore, and I said a prayer with him pleading that she wouldn’t die. I hoped against hope that they would be able to save her.
They rushed Addi to the hospital, and we followed. When we arrived the doctor told us they did everything they could. "She is gone," he said. Gone."
"It still hurts to remember that day, but I will always remember Addi. I will always love her, and I know she will always be with me. I am grateful for that, and I am grateful for her. The day she died was the worst day of my life, but while she was here she gave me many of the best days. Those are the days I hold on to the most because those are the days that really matter."
As a mother, it is difficult to express what is felt when you think of your children. A mother always knows, or so goes the saying. We are meant to kiss away hurt, to lift, and to hold. The following entry came from what I am sure are the deepest, and most sensitive parts, of a soul. Dear, Lana?
You are indeed a woman made of something stronger.
"The other day, after Keaton went to school, I heard an ambulance and fire truck outside. When I looked out the window, sure enough, there they were parked in front of our neighbors home. I became suddenly sick, and my heart started beating faster as the events of the morning that Addi died came rushing back into my mind. Then? I cried. It was the worst day of my life, and those sirens will forever bring it back to my mind. Addi had been sick, and came to me and said, “Mama, I need to throw up.” I tried to calm her, and when she did throw up, bile from her stomach came out. When that happened, she couldn’t breath. I told her to relax and try to breath. She muttered an “Ok” and I said, “don’t try to talk.”
She tried to breath, and I tried to calm her but to no avail. She began to suffocate while I tried everything I could think of to save her. I did CPR until the paramedics came. When the paramedics arrived, I had hope that they could somehow save her. I took Keaton in the other room, so he didn’t have to watch anymore, and I said a prayer with him pleading that she wouldn’t die. I hoped against hope that they would be able to save her.
They rushed Addi to the hospital, and we followed. When we arrived the doctor told us they did everything they could. "She is gone," he said. Gone."
"It still hurts to remember that day, but I will always remember Addi. I will always love her, and I know she will always be with me. I am grateful for that, and I am grateful for her. The day she died was the worst day of my life, but while she was here she gave me many of the best days. Those are the days I hold on to the most because those are the days that really matter."
Just Being Kids
Who doesn't love camping? And kite flying, and swimming, and eating s'mores.....
Oh, to be a child :)
http://www.youtube.com/watch?v=SoRllfVz-DQ
Oh, to be a child :)
http://www.youtube.com/watch?v=SoRllfVz-DQ
Saturday, June 9, 2012
Shirts
Hello everyone! The 5K is drawing nearer, and we have finally finished the shirt design :)
Registration for the 5K is open, and donations for the Weimer family, as always, are welcome!
As previously stated, if you cannot attend the 5K, but would still like a shirt, please email timeforweimer@gmail.com. Thanks everyone!
Registration for the 5K is open, and donations for the Weimer family, as always, are welcome!
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| Front |
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| Back |
As previously stated, if you cannot attend the 5K, but would still like a shirt, please email timeforweimer@gmail.com. Thanks everyone!
Tuesday, May 29, 2012
Thursday, May 17, 2012
Divine Intervention
There have been some who have asked me, "How do you know Lana and her family?" Truth be told? I do not. Not extremely well, anyway. Not yet. Whether one believes in it or not, I find the only phrase fitting to describe how Lana and I came into each others lives to be this; divine intervention. Lana, her family, and their story inspire me to degrees unexplained. In this life there are many, families and individuals, who struggle with different trials. Life is filled with trials; we face them, and in most cases, overcome and accept them.
It is in such a trial that Lana has been gracious enough to tell me her story. To share pieces of her world, pieces of her family, and in turn, some of the deepest feelings of her heart and soul. The Weimer's story is one that needs to be shared; it needs to be heard. I myself had never heard of SMA prior to seeing the youtube video Lana posted. I never knew the impact it has on so many children throughout the world, nor could I have ever imagined what so many families endure when dealing with the disease. It has been said that ignorance is bliss. There is no bliss within this ignorance. There is no current cure for SMA. SMA needs to be better understood. The fight for a cure against cancer is nearing daily because everyone knows about it, and people are doing things to help.
SMA must follow suit.
"Sunday a woman sitting by us asked me how old my baby was. I told her he is 5 ½ months old. She said, “Is he crawling?” and I responded, “No, he hasn’t been able to crawl.” Honestly, I never know when to tell people more. Do I tell them that my baby will never crawl? He will never walk or even roll over because he has a muscle disease. When do I just leave it with a short simple answer?
No matter what I say, I am always left thinking.
I think about how we are different, how much I love my kids, how amazing they are, and how sad it is that they cannot do what most kids can."
"Many times, especially when I was pregnant, people would ask, how many kids do you have? That is another question I struggle with. How do I respond? Sometimes I say four. Sometimes I say two. I feel like I have four kids, I know I do, but I have two kids at home now. I had four, and knowing there are only two now is a feeling I don’t believe I will ever get used to."
-Lana Weimer
Share the Weimer's story, and help the world understand.
It is in such a trial that Lana has been gracious enough to tell me her story. To share pieces of her world, pieces of her family, and in turn, some of the deepest feelings of her heart and soul. The Weimer's story is one that needs to be shared; it needs to be heard. I myself had never heard of SMA prior to seeing the youtube video Lana posted. I never knew the impact it has on so many children throughout the world, nor could I have ever imagined what so many families endure when dealing with the disease. It has been said that ignorance is bliss. There is no bliss within this ignorance. There is no current cure for SMA. SMA needs to be better understood. The fight for a cure against cancer is nearing daily because everyone knows about it, and people are doing things to help.
SMA must follow suit.
No matter what I say, I am always left thinking.
I think about how we are different, how much I love my kids, how amazing they are, and how sad it is that they cannot do what most kids can."
"Many times, especially when I was pregnant, people would ask, how many kids do you have? That is another question I struggle with. How do I respond? Sometimes I say four. Sometimes I say two. I feel like I have four kids, I know I do, but I have two kids at home now. I had four, and knowing there are only two now is a feeling I don’t believe I will ever get used to."
-Lana Weimer
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